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The Nod to “Naz” Exhibit

During our 50th Annual National Convention in 2023, SCDAA was proud to exhibit the artwork of Hertz Nazaire at a pop-up exhibit. Known for his advocacy work and “Finding Your Colors” adult coloring...

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SCDAA promotes Kevin Amado Jr.

The Sickle Cell Disease Association of America Inc., a national nonprofit membership organization that advocates for people affected by sickle cell disease, promoted Kevin Amado Jr. to senior community...

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In Memory of Monica Rockwell

It is with great sadness that SCDAA shares the news of the passing of Monica Rockwell, executive director of SWGA Sickle Cell Awareness, on April 10, 2024. Monica was a tireless advocate and dedicated...

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Statement on the Inclusion of DEI in Medical School Curriculum

SCDAA joins the National Medical Association, the American Medical Association, the American Association of Medical Colleges, and other groups, in advocating for DEI programs in medical institutions....

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SCDAA Statement: Know Your Rights in the ER

Know Your Rights in the Emergency Department – Biden Administration Releases New Guidance The Centers for Medicare & Medicaid Services (CMS) is promoting new resources to remind individuals about...

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WHO Publishes New Guidelines for SCD Management in Africa

The World Health Organization (WHO) recently published a comprehensive package of interventions for sickle cell disease management in Africa. The package outlines a holistic and integrated approach to...

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MARAC Statement: Parvovirus B19, Fever and Urgent Care

MARAC Statement: Parvovirus B19, Fever and Urgent Care Aug. 13, 2024 – More infections with parvovirus B19, also known as “fifth disease” or “slapped-cheek disease,” are showing up in 2024 [1,2]. WHY...

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CHW P.O.W.E.R Award

CLICK HERE TO LEARN MORE AND MAKE A NOMINATION Do you know a community health worker who exemplifies excellence and commitment to the sickle cell community? Nominate them for a SCDAA P.O.W.E.R CHW...

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Sickle Cell Awareness Month 2024

All across the country, our member organizations are hosting exciting events for Sickle Cell Awareness Month this September. Check out the list below to find an event near you. Alabama Sept. 22: Annual...

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MARAC Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal

SCDAA Medical and Research Advisory Committee (MARAC) Statement: Pfizer’s Voxelotor (Oxbryta®) Withdrawal 9/27/24 What is the news? Pfizer announced the withdrawal of voxelotor (Oxbryta®) from...

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